~ by Meg Bernard ~ Small Girl with Parkinson’s
I have a station set up in my bathroom where I have all the tools I need in order to sit and crush up all of the various medications I take to help treat the symptoms of my Parkinson’s disease; or any other medications I may be needing to take at any given time. I mix these crushed medications with water, turning them into suspensions which can then, via syringe, be injected into my intestinal feeding tube. It has to be done carefully and properly and it has a tendency to be slightly time consuming, yet I am grateful for this life-saving gift.
I keep the area I work in tidy, clean and organized; it reduces the risk of a mistake and it makes my job a lot easier; BUT there is one thing that I always do that tends to make my space look slightly more chaotic than functional…
You see, I learned early on in my ‘tube feeding career’ that spills happen often, and I discovered that blue dry-back dental bibs work as a perfect cover for my workspace! Each day I pull out a new one and place my tools on top of it, tidy and ready for use. BUT, I also learned something else about the blue dry-back dental bibs; they are PERFECT for writing on!! It is on these dental bibs that my chaos is created; I can’t help but write down my thoughts, appointment reminders, items that need to be purchased, questions that come to mind or things I simply want to learn more about. As each bib becomes covered in words, it also becomes my version of a masterpiece.
A few days ago, as I was letting my mind wander, I scribbled down a thought; a combination of questions actually; on my dental bib, and as I stared at the words in front of me I realized that I wasn’t sure of the answer. Perhaps I could make up an answer or two; something generic and ‘all purpose’; but ultimately, seeing as I couldn’t genuinely answer the questions when I asked them of myself, how could I, in honesty, answer them if they were asked of me by a friend or acquaintance. These are questions that have plagued me for years and I have a feeling that many of you may feel the same way.
I took a picture of the words on this particular ‘dental bib’ and decided to share the photo with you. Perhaps if we work together we can come up with an answer; or perhaps there is no answer; in which case at least we have the comfort of remembering that we are not alone…we’re all in this together…
Much Love ~ Meg; SGwPD